Meet Christine, a vibrant 11 year old girl with a kind heart and winning Spirit.

Christine was diagnosed at the age of 7 with Parry Romberg Syndrome and it's varient,  Linear Scleroderma also known as "en coupe de Sabre." Christine is so brave as she endures the awful affects of the disease.

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What is Parry Romberg Syndrome and its variant Linear Scleroderma?

Parry Romberg Syndrome - Also known as progressive hemi facial atrophy and is a rare, incurable autoimmune disease that affects the subcutaneous tissue (tissue under skin) and later may involve the facial muscles and skeleton.

Linear Scleroderma - is a form of localized scleroderma which sometimes forms a long crease on the face. It may be referred to as "en coupe de sabre" because of its resemblance to a saber or sword wound.

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Treatment for Parry Romberg Syndrome and Linear Scleroderma, as well as Reconstructive or Micro Vascular Surgery ...is there hope?

There is no treatment to stop the progression of Parry-Romberg syndrome. Reconstructive or microvascular surgery may be needed. Muscle or bone grafts may also be helpful. Other treatment is symptomatic and supportive.

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Our Vision for the future of "Christine's Champions for Hope" is to establish a foundation that may improve the lives of children with Parry Romberg Syndrome and their families through financial and other necessary support.

Children are our future, they need to thrive in their youth so they can become the person they inspire to be. We feel that It's our responsibility as a society to make sure children have every opportunity available.

Christine's Champions

This page is dedicated to the people who helped make a difference in a child's life.

"At Times our own light goes out and is rekindled by a Spark from another person. Each of us has cause to think with deep gratitude of those who have lighted the flame within us."

Read Credits